Menu

Ask An Expert!

Hello Everyone,

#SupportVitiligo has been receiving questions for the past 2+ years, since the launch of the Support Vitiligo video. Our volunteer, Swati, has done a commendable job of tracking the numbers and we have found 2000+ responses/ comments (including questions on treatments/ emotional & mental health) on our videos/posts across social media handles. We have culled out a series of FAQ’s and will be posting them on our social media handles (Facebook, Instagram & others).

We would like to thank our doctor Volunteers for volunteering to answer/ verify the FAQs.

Dr. Sanjeev Mulekar | MBBS| MD (Dermatalogy)| 34 years of experience.

Dr. Baktha Reddy | BD| MD (Dermatalogy)| DME (UK) | 56 years of experience.

These questions are moderated by, SushAmita Pradeep Jain | Person with Vitiligo (for past. 20 yrs| Partially cured)

Please post all your questions here. We will do our best to respond to it and include it in our FAQs.

Follow the FAQs on Instagram @SupportVitiligo

This website was made with love by Archived Potential.Click here to visit them and get a website for your business.

Logo

This website was made with love by Archived Potential.
Click here to visit them and get a website for your business.

Logo

43 comments

  1. Who do we (the vitiligo community) persuade the medical community to acknowledge vitiligo for what it is—an internal issue? Dermatologist are NOT the experts on vitiligo. Dermatologist treat the skin so how can they possibly help someone with internal issue that cause de-pigmentation?

    My vitiligo community has began to think for ourselves because dermatologist and scientists will not listen to us. US dermatologist are extremely uneducated on vitiligo and it’s causes.

    Why don’t derms test for MTHFR or other genetic mutations? Why don’t derms acknowledge that childhood vaccines stimulate or endure vitiligo? Why don’t derms acknowledge that every single person with vitiligo has leaky gut? Why don’t derms acknowledge or give information on how autoimmunity stems from the gut? Why don’t derms test for heavy metals and other environmental triggers for vitiligo? Why don’t derms acknowledge that the American Standard Diet and FDA approves foods spread vitiligo due to inflammation? Why don’t derms recommend clean, organic foods? Why don’t derms acknowledge that their patients are acidic and that they’ll never heal unless they have an alkaline environment? Why do derms recommend products and chemicals known to cause cancer? Why do derms recommend toxins for children? Why do derms prescribe creams and lights knowing that is only a temporary fix for an internal issue? And lastly, why don’t derms test for hormonal imbalances that also induce vitiligo?

    The vitiligo community does not trust dermatology or dermatologist for these reasons!

    1. Hi Jenifer,

      Even I am a person with vitiligo, just like you. Yes there is no permamanent cure for Vitiligo, so far. I have been healed by UVB Narrowband partially (face, arms and legs. No results on feet, elbows and hands). Even i had a hard time taking many many treatments , running behind dermatalogists, etc. I have realized one thing that vitiligo management is two sided and the two sides consists of persons with vitiligo & dermatlaogists. We need to know both the sides to manage vitiligo, if not cure. At the same time we are equally responsible for answering all the “why’s “. Thats why I am moderating this and seek guidance from dermatalogists, when required. Vitiligo management is not just medicine it has to do a lot with the gut & general lifestyle including mental health.

      1. Hii Shushmita your efforts are tremendous. i am also a vitiligo patient, i am 28 years now and i became a vitiligo patient when i was 8 years old. i never thought about the people i faced a lot of discrimination but i studied very diligently and currently i am a Govt. officer in Mumbai Customs, i want to help you in your initiative in any manner possible.

      2. Good to hear from you Gupteshwar. You can definitely volunteer with us. Please write to [email protected].

        Would suggest you to join our support network on Telegram App. Ping us to +91 9845668296 on Telegram app, we will add you to the group. We share treatment experiences and other aspectd related to Vitiligo /Leucoderma which might be helpful to you.

    2. i have 16 small white patches on my leg , shoulder both side .
      i notice it since 20 days and i am very sad and disappointed please help me

      1. Hello,

        Glad you reached out to us.
        Would suggest you to join our support network on Telegram App. Ping us to +91 9845668296 on Telegram app, we will add you to the group. We share treatment experiences and other aspectd related to Vitiligo /Leucoderma which might be helpful to you.

  2. I had vitiligo on my neck and lower lips and it was stable from 2 years . No response for oral treatment.what can be done for curing it?and my beard colour changes into white hair does it can change into black?

    1. Hi Dinesh,

      One of the commonly used treatments is Narrowband UVB. It may help for your neck area. Results are not guaranteed. As far as the lip area is concerned, I have not seen any improvement for myself through UVB Narrowband and even with my interaction with persons with Vitiligo. Lip area & palms are tougher to repigment.

      Some people with Vitiligo have also found results with food habbits. I.e. eating food that suits our body & avoiding autoimmune triggers. Some autoimmunity triggers maybe – Gluten, Diary & citrus. Healthy food habbits & exercise may help in stabilizing vitiligo.

  3. My son is 6month and he is having vitiligo , right now its only on side of the forehead and its prestage, i am scared is there any cure or will it spread , or even after treatment the pigmentation will be back or not or even after treatment itwill spread ?? Whats the best treatment ?

    1. Hello Sara,

      Your son is too young.
      Being a person with Vitiligo, I can say there is no permamnent cure so far. UVB Narrowband is a widely tried option but your son is really young for it. Take care.

  4. Does vitiligo genetic ? Because my grandfather had it and my father too. Now I have it which is spreading over the time on my legs nd neck.

  5. Hello sir, this is Neha from indore (m.p) I have Vitiligo from past 4 year,I try so many treatment for the same like allopathy, ayurvedic, herbal but nothing could work and it’s spread on 70 percent on my body,recently I started narroband uvb treatment for 2 months ago and I want to know about this treatment will it safe for me???
    And I take 2 seatings in one week, one is without medicine and one is with medicine and the medicine name is kuvagold -20
    Want to know about this treatment is it cure vitiligo and will it is safe to take the medicine for long time?? Please do reply

    1. Hi Neha,

      I am a person with Vitiligo myself. So far, there is no treatment which gives us 100% results. UVB Narrowband can help to an extent that too the result varies from person to person. Please watch this video. I have shared my experience with treatments. Most important thing is try to destress yourself. Stress may trigger new patches. This I am telling, is out of personal experiences.

      https://youtu.be/nN6SKzIlZpE

  6. Today, i saw a question in FAQ whether Vitiligo is hereditary or not. Further, i want to know if both partner has same vitiligo condition then what would be chances of passing it in coming generation?

  7. hello i m 21 year old i suffered with vitiligo for almost 1 year ago. i have white patch around my lips area. this disease increase day by day. initially it was just like a spot near to lips but it cover all my lips now. i has been used many types of medicines now a days im going for treatment in nearby hospital for uvb narrow band arround 15th session completed but didn’t gve positive response. i want to get rid of this please tell me what should I do.

    1. Hello Iqra,

      The earlier comment got deleted due to an issue with the hosting server.
      Lips are tougher to cure compared to other areas since its prone to movements. If we come across any stable treatment then we will let you know. As a temporary solution, you can use lipstick on your lips, if that is comfortable with you.

  8. I am taking Ayurvedic medicine. Which is the best time to take tablet after food in the morning and night.

    1. Hello Parthasarathy,

      Glad you reached out to us 🙂
      I have already shared what helped and how UVB helped me in the videos. What you are taking might be PUVA (UVB + Psolaraen Tablet) and see if UVB alone helps you. Coz psolaraen tablets might not be required if UVB alone helps you.

      Would also suggest you to join our support network on Telegram App. Ping us to +91 9845668296 on Telegram app, we will add you to the group. We share treatment experiences and other aspectd related to Vitiligo /Leucoderma.

    1. Hello Shakir,

      The diet patterns vary from person to person. Some of the triggers might be,
      1. Diary Items
      2. Citrus based Fruits (Orange, Lemon etc.)
      3. Tamarind
      4. Gluten (Wheat flour based items like roti, breads etc.)
      Other factor
      5. Stress

      You need to find which of the above might be a trigger knowin your case and try avoiding it and see. Please do not avoid everything blindly. Check it out for yourself.

  9. I have Vitiligo for past 4 to 5 years,I tried so many treatments for the same like allopathy, ayurvedic, herbal but nothing could work, infact my vitiligo spread more on my body,it spread 60% on my body. Recently I started narrow band uvb treatment,I want to know is it safe treatment to taking for long time and should I have to keep any restrictions?
    Please reply
    Thank you

    1. UVB is safe if taken under proper supervision and dosage.
      Would also suggest you to join our support network on Telegram App. Ping us to +91 9845668296 on Telegram app, we will add you to the group. We share treatment experiences and other aspectd related to Vitiligo /Leucoderma.

  10. Hi sir I have lots of medicine use but I have no any good response,so now I am nerves about vitiligo, vitiligo treatment is possible ?

    1. Hello Kunjan,

      Would suggest you to join our support network on Telegram App. Ping us to +91 9845668296 on Telegram app, we will add you to the group. We share treatment experiences and other aspectd related to Vitiligo /Leucoderma which might be helpful to you.

  11. Mam iam getting these white spot from the age 11 and now iam 19 i have gone to varous doctor but the result are not coming . all the doctor whom i met always gave me one particular diet in which some sujjested eat only boiled food some told me not to eat banana not to drink milk . iam going through depression mam because of this mam please tell what should u do 🙏

    1. Stress will increase your marks. So dont take stress.
      Most important point-1-Do not rub your skin like eyes or any area with tight hands, just do it with soft cloth or gentle touch.
      2- Do regular exercise, Min. for 30 minutes. Dont take this point lightly. If you want to stop the marks then this is the crucial point .
      3- expose your marks to sun for 5 mins
      4- dont eat sour food.
      5-eat dry fruits like black dates, akhrot etc
      These point will 100% stop your marks.

  12. Hello,
    I am from Nepal. I am also suffering from vitiligo since I was 16 yrs old. Then at that time I got totally cured within 1 year by Ayurvedic medicine. But again after 10 yrs when I became 26 it reappears again and it is now stable not spreading since 4 yrs. And that Ayurvedic medicine is also not working well but also I am using that same medicine because it has stopped to spread my vitiligo. Now I have decided to go further treatment. Which one is best treatment for my vitiligo?

    1. Hello Bivek,

      Glad you reached us 🙂
      UVB Narrowband had helped me in my case partially. I have shared my experience in detail, in these videos. Please watch it you might get some idea. Ignore if you have already watched it. Will let you know, if we come across any affective cure. If you wish to join our supportgroup you can email us your contact number to [email protected]
      We generally share & discuss issues & remedies (which helped some people) in the group.

      https://youtu.be/5lzE2iwTKXE

      https://youtu.be/nN6SKzIlZpE

      Take Care! 🙂
      SushAmita,
      Founder & Volunteer,
      SupportVitiligo Team

  13. I have vitiligo in my full body. It’s full white. Now days it comes dot dot black skin color like while starting stage of vitiligo like white dots.
    Can I get treatment?

    1. Since you already have in full body, do you want black(skin) spots to be white ? Are you looking for stable depigmentation (white)?

  14. Hello mam .. I really find what type of video I was wanted! And Yess I m so thankfull for sharing this video. I really fine it good .. actually my mother is having vitiligo… And plzz just give me a advice plzz I really needed and yes the main problem is my mother is having sugar so plzz becoz of having sugar some said that it will not work so pls suggest me some good !! Plzz

    1. Hello Anju,

      Thank you for your message.
      As you would have seen in the video, there is no specific cure for vitiligo. UVB had helped me in my case partially. I have shared my experience in detail, in this video please watch it you might get some idea. Ignore if you have already watched it. Will let you know, if we come across any affective cure. If you wish to join our supportgroup you can email us your contact number to [email protected]
      We generally share & discuss issues & remedies (which helped some people) in the group.

      https://youtu.be/nN6SKzIlZpE

      Take Care! 🙂
      SushAmita,
      SupportVitiligo Team

    2. Hello Anuja,

      Thank you for your kind words and reaching out to us.

      We understand your situation. You can ping us to +91 9845668296 (Number available Through Whatsapp or Telegram App).

  15. Hi
    Im suffering from vitiligo
    In ur last vedio you said that you have gone throw narrow band ubv and it’s almost cured for you do we have to use that nuvb on regular basis or till the spits fades away are there chances the vitiligo comes back after nuvb?

    1. Hello Najam,

      Glad you reached us 🙂
      UVB Narrowband had helped me in my case partially. I have shared my experience in detail, in Hindi video . Please watch it you might get some idea. Ignore if you have already watched it.

      Hindi| https://youtu.be/nN6SKzIlZpE

    1. It depends from person to person.
      If you are a person with Vitiligo, Would also suggest you to join our support network on Telegram App. Ping us to +91 9845668296 on Telegram app, we will add you to the group. We share treatment experiences and other aspectd related to Vitiligo /Leucoderma.

  16. Hi ShushAmita,
    I have Vitiligo from past 12yrs and after watching your video I started taking NBUVB treatment with this patches on face and chest were cured but the patches on arms and feet are not getting coloured (no results when compared to face and chest).

    Kindly help us with the treatment details for Vitiligo on feet and arms

    1. Hello Ganesh,

      Good to hear from you that the videos helped you in getting partially healed 🙂
      Would also suggest you to join our support network on Telegram App. Ping us to +91 9845668296 on Telegram app, we will add you to the group. We share treatment experiences and other aspects related to Vitiligo /Leucoderma. It might be helpful to you.

  17. Mam i have vitiligo from the age of 5, it spread upto 13 years on feet but after that it stopped. It mostly occured on the place in which we rub our skin with our hands or anything, specially on elbow, eyes, feet, lips. But fortunately it do not spread and it is only on my feet and stopped . I think it is due to sun exposure and regular exercise. I love doing exercise daily at home for 1 hour. But what should i do to remove the rest of the marks from my feet

    1. I have Shubham, thanks for writing to us. Feet, hands, joints, lips and palms are tougher areas compared to other areas, since they are prone to movement. In some cases, diet habbits have helped, provided the progress has been slow. You can join our support network on Telegram App, there we share/discuss about daily hacks, inputs which had helped people in general.you can ping us on Telegram App to +91 9845668296.

  18. In my opinion and experience from vitiligo is that:-
    1- Do not rub your skin like eyes or any area with tight hands, just do it with soft cloth or gentle touch.
    2- Do regular exercise, Min. for 30 minutes. In my experience, i do not take much proper diet but i love doing exercise. From this my marks are stable from past 6 years.
    2- i love playing . So by default i ecpose myself to sun
    3- stop eating at least sour food, if you have mood to eat something sour then eat fruit except food which is sour like orange, amla

Leave a Reply

Your email address will not be published. Required fields are marked *